Meet miss Jaidyn Cayse. At two months old, this spunky little lady was diagnosed with critical Congenital Heart Disease characterized by an abundance of heart defects. Her specific disease is known as Shone's Complex, consisting of mitral stenosis, aortic stenosis, and coarctation of the aortic valve. Shone's Complex is extremely rare among the various types of CHD. In addition to this, she has pulmonary hypertension, Atrial Septal Defect, Ventricular Septal Defect, and a bicuspid aortic valve. At two months old, she had a thoracotomy to repair her coarctation. There were complications during her surgery that led her to have two separate pulmonary hypertensive crises directly after the completion of her procedure that almost claimed her life. Her heart had endured more than it could possibly handle and was failing her, but did that stop her? Nope. This little girl pushed through and left all of her doctors and nurses in shock when she made a miraculous recovery, regardless of the unfortunate cards she had been dealt. Jaidyn underwent open heart surgery number two at 1 year old and conquered it as well because she knows that although she is small, she is MIGHTY. Then at 2 1/2 years old, she underwent her third and fourth open heart surgeries back to back within the same week. These were the scariest of all. During these surgeries, she had major complications that led to another extremely unpredictable period of time inside the ICU. However, she continued to push through with a smile on her face and is now 100% pace dependent rocking her brand new pacemaker and mechanical mitral valve. And the best of all - happy at home living her best life.
Jaidyn will battle Congenital Heart Disease for the rest of her life and there are definitely more surgeries in her future, but her will to live is much more fierce than her illness. Jaidyn continues to defy the odds and we're so excited to watch her write the rest of her story exactly how she wants it to be.
Jaidyn is not the only child who battles Congenital Heart Disease on a daily basis. 1 in every 110 children are born with CHD, while 1 in every 4 of these diagnosed children are born with a critical form of CHD. Jaidyn is our symbol of strength and positivity, as is every child battling this life altering disease. There are still major advancements in medical treatment and research that need to be made in order to decrease the prevalence and devastating effects of CHD. Join us in supporting these amazing children and raising awareness, so that hopefully one day these children find the medical answers they need to live normal, limitless lives!